And I really do hate it this time, because despite being right I’m the one that ends up losing!
So on Friday I received a phone call from King’s with (almost) the full results of my recent bone marrow biopsy. Unfortunately despite the 3 rounds of chemo I have had, the results show that the level of cancerous blasts in my bone marrow is the same if not slightly increased. They are still trying to do some cytogenetic testing, but apparently the sample taken wasn’t the best and they are struggling to get the results.
So what does this mean? I’m not entirely sure yet. The doctors are still discussing me. They are suggesting moving on to more intensive chemo but haven’t decided what yet. It is a bit of a balancing act trying to kill the disease, without losing the transplant. They have been discussing going for a third transplant. They have been discussing some clinical trials, but unfortunately I don’t tick the criteria boxes for those having already had a transplant. The have been discussing some weird and wacky options where they harvest my blast cells and essentially make a vaccine! So treatment protocol wise I’m in a bit of a state of limbo until they decide what is best to do!
But in a nutshell….. I was right…I wasn’t convinced the aza was going to work. One good thing is it has probably stopped the disease spiraling out of control, however it hasn’t got rid of it. But I really didn’t want to be right!! I really had hoped the doctors would prove me wrong!
In the meantime I’m currently sat in a hospital bed, hooked up to fluids and IV antibiotics and fluids. The back end of last week I started to show signs of the common cold. Sore throat, runny nose, bit of a cough and fatigue. By the end of the weekend I was running a fever and had to be admitted to A&E. Its “only a virus” but my body is trying to fight this virus with 0.2 WBC and 0.1 neutrophils! So I will likely be here for a few days being kept a close eye on!
To end on a more humorous note….. I just found one of those ecg stickers under my boob when I just had a shower. This was despite having a conversation with the HCA about finding these days after and us both being careful to try and remove them all!! ha ha!
Emma's fight against MDS 