How far I have come

It seems crazy to think that this time last year I was packing my things (well I should have been) and preparing for my admission to kings hospital for my second bone marrow transplant. I was weak and recovering from all my previous infections but trying to make the most of the time at home before hitting the chemo.

Now I’m almost a year post transplant and most of the time I am feeling great. Ok things aren’t 100%. but they are a damn sight better than I thought they would be at this point! (if I was here at all!) Physically my main complaints are fatigue, skin gvhd and a few gut issues but most of the time these can be controlled by a careful balancing act of rest and diet. I am starting an activity/food diary currently to try and work out any trigger points for physical changes.

I’m starting to get back to a new level of normality. I’m able to pace myself well enough so I can do my gym classes, I’ve even been back teaching some body pump and freestyle step classes! I’ve even been training my brain by taking on a PT course and a yoga course! These are things I have wanted to do for a while and have finally decided that I feel ready to take them on. It is also proving to be a great test of my concentration skills. I have been finding that whilst studying I really struggle to concentrate for more than half an hour at a time, and even then I’m re reading sentences. I have slowly been getting better though and its been great to have this as an exercise before going back to work.

So what about returning to work? I have been incredibly lucky to have a great family support throughout my illness so financially I haven’t had to worry too much, but it would always be nice to have a bit more pocket money to play with! It has now been a 1.5 years I have been off work….. 1.5 years…. I will be honest and say I am a little bit daunted by the idea of going back for many reasons (will do a separate post) but it feels like time to start considering it.I have put the wheels in motion and should be discussing role options with wok in the new year, will update as and when I know!!

So its all onwards and upwards! Lets see what the new year holds!!

Any new years resolutions?

Also – how should I party on the 7th January to celebrate my one year bone marrow anniversary??

Here are some photos of me doing some of the crazy things over the last month:

 

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4 thoughts on “How far I have come

  1. Sam Clarke

    Emma, great to see your progress and obvious love of life and all the good things it brings.

    I have lots in common with your situation and feelings and it’s nice to see someone with the same positive attitude and belief that when we look back we can use this as inspiration to keep pushing forward.

    Have a great new year, knock those challenges down, and enjoy the party!!

    Sam

    Like

  2. Diana Lockyer

    You have done remarkably well Emma. We all know its been very difficult and you have needed all your resources of courage and character to get to where you are. Well done! Good luck in 2017. xx

    Like

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