As the chemotherapy has now had a chance to work on my bone marrow we should now see all my old blood cells die off, as no blood cells will yet be produced by the new stem cells. This means that all of my blood counts will work their way down to pretty much 0. In the next few days I will have no immune system and I will rely on supportive care such as Red blood cells and platelets. Here’s the progress so far:
Since the stem cells infusion I have remained well. I’ve had a few mini fevers, but nothing that isn’t considered normal or thought to be an infection. The chemo is starting to show its effects, but only in a minimal way. I’m feeling more tired and achy, I feel constantly full and bloated with no appetite, and everything tastes nasty!
As I think I’ve said before chemo isn’t very choosey in which cells it destroys and it will work its way through most of my fast dividing cells (hair, mouth, stomach, gut, skin). At the moment my mouth is starting to be affected which is called mucositis. My mouth is all fuzzy inside, I have a constant horrid taste and bits of skin (like the white bits you get on the inside of your cheek) are coming off in lumpy bits (gross!!). This is currently VERY mild mucositis. Muscositis can get nasty…….. it can be incredibly painful with raw skin and ulcers making it too painful to eat or drink. It can also get infected easily with bacteria or fungal infections so its really important to do good oral hygiene with all the mouthwashes provided by the hospital. These are horrible but trust me an infection in your mouth is much much much worse!!!
On a positive note the doctors have reduced my ciclosporin dose so I feel much better as my tremors and BP have reduced. I’m still not quite convinced its low enough, but guess its not really worth reducing it too much in case I reject the new cells!!
In summary though I’m doing stupidly well so far considering the poison i have been pumped full of….. I’m still managing to eat and get outside for some walks, although not quite my 10km from previous days!! I’m still remaining mostly positive, although the tiredness has started to make me a little bit grouchy! Long may it all continue!!