No going back now…..

Yesterday was an interesting day…… The nurses thought I *might* get a cancellation for the insertion of my hickman line so I had to stay in the hospital for the day to ensure I would be near by. Turns out I wasn’t actually booked in till today…… so that was a waste!!

To make up for it I have been rebelling and escaping last night and this afternoon. Both times I have been called by the hospital to get back; once because I was gone too long (according to hospital policy apparently) and the second because a porter had come to pick me up for a chest x-ray! Ooopss!!!

Today was my first dose of chemo (fludarabine). After some too-ing and fro-ing the doctors finally decided to give me the full dose of the chemo. (Until yesterday they had halved my dose as my kidney funtion didn’t look too great, apparently it is fine now despite the half bottle of wine last night!)

For anyone that is interested here is my chemo regime for the next week:


Likelihood is it will take a few days to get side effects from the Fludarabine, but once the Campath hits I will feel like poo!!

Chemo has started and that is it, no going back now…. goodbye old bone marrow!! Gaaahhh…. I feel like now I am just sitting and waiting for any side effects…..

On a lighter note…… here is Reagan and Russell rocking my wigs!!




One thought on “No going back now…..

  1. Those wigs suit him! Hope you feel ok, hang on in there. We are thinking of you. If you like surreal comedy I’ve been watching This is Jinsy and We Are Klang on YouTube so you could check those out of you get bored. Worst Jobs in History with Tony Robinson is quite good too xxx


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