I didn’t get the chance to beat any PB’s with the wee jug…… think the best I did was 650mls which is just pathetic really! However, it is for a good reason, I am now home!!
After 4 nights at kings with no temperatures they decided I was good to go home. Feels a bit strange though, I was expecting to be there at least a few weeks before I got let home and even then I thought I would be discharged to Peterborough hospital not actually allowed home!! Bit sad in some ways as I was looking forward to seeing more of my friends in London next week, but much better to be home for a bit!!
So what changed the plan??? Initially the idea was I got some granulocyte transfusion from friends, hence the call out on facebook, to boost my white blood cells and give me more of a chance of fighting off these infections. (Thank you again to all those friends that were booked in to donate). Whilst waiting for the donations my consultant decided it was worth having a go at stimulating my own bone marrow with a hormone injection called G-CSF to see what happened. Previously we didn’t want to use these injections as we didn’t want to risk stimulating the cancer, but at this stage it is no longer a concern.
Amazingly the GCSF injections worked and my neutrophil count has gone from 0.01 to 1.9!!! Hopefully these little bug fighters will clear me of my ailments and protect me a bit more going forward!!
As ever at kings the discharge process was frustrating…… After suggesting my dad picks me up in the morning and the pharmacist saying my take home drugs would be ready around 11am we didn’t actually receive the drugs and leave the hospital till after 3pm. Then lucky us got to hit several spots of friday night traffic making it a fun journey home….. ergghh!!!
Booked in for blood tests monday in Peterborough to check platelet level, etc. Tuesday its a trip to London for another bone marrow biopsy (the Peterborough sample got lost on route…. *sigh*), a renal function test, and an outpatient appointment. It seems that my donor is a match and will be available in January but it all needs to be confirmed, hopefully will find out next week!
Attempt to take things easy. I know that when I get tired I am more likely to get run down and get by an infection so I’m going to take my gran’s advice and pretend I’m 70 years old and do mostly sitting……. Well maybe not quite but I am going to try and force myself to slow down a bit!!