So I’m now on Day 7 of chemo. I’ve now finished all the nasty red daunorubicin and am just on cytarabine twice a day. Today is my last day of antibiotics so from tomorrow onwards I’m allowed on day release 🙂
Mostly I’ve been feeling ok. Waves of nausea come on throughout the day and moments of nausea due to gastroparesis (my stomach no emptying) but I’m still managing to eat. Feeling a bit tired and gums are a bit tender but this should be pretty much the worst of it so I’m doing really well 🙂
Still waiting to hear back from Kings to find out the plan going forward. I believe the next steps are to finish this cycle of chemo and do a bone marrow biopsy on day 28 to assess the level of cancer still there and decide if more chemo is needed.
Now that I’ve been in hospital on and off for the last month I thought I would give all of you that are lucky enough to have never been an inpatient an insight into hospital life and routine here on haem/onc at PCH.
6am – Woken up for observations (Blood pressure, heart rate, temperature, etc). When my PICC line has been working they would take my blood and then attach me to my antibiotics
6:30am – My pump will be bleeping to say my antibiotics are done…. call the nurse… wait to be flushed and detached
8am- Cleaner barges in to empty bins in my room (I swear this couldn’t be done any more noisily if they tried)
8:30/9am – I get breakfast delivered in with a choice of various cereals or (bendy) toast. Drug round is done and any oral meds are administered. Plebo comes in to stab me and take blood if my PICC line hasn’t managed to bleed.
9/10am- My chemo will be administered by the senior nurse. A HCA will try and turf me out of bed so my bed can be made, which is when I would normally treat myself to a luke warm shower (can’t have any patients burning themselves can we?!?!)
10:30 –I will have to give my lunchtime order (chosen from a menu which stays the same for my whole stay, but all in all isn’t too bad as long as you remember all food is steamed, i.e. steamed fish and chips are not pleasant!!) to the hostess when my dinner tray is collected and be offered a hot drink
10/11- Observations done. Cleaner comes in to clean my side room (everyday they pour bleach down the sinks and toilet, dust down the sides and clean the floor)
11/12 – Doctor normal pops in to quickly assess me (listen to my chest, etc) and check how I’m doing.
12:15 – Lunch is served and lunchtime oral drugs are given out
1pm- Lunch trays collected and dinner order given in
2pm- My antibiotics are hooked up and my observations done, again I will be detached around half an hour later
5pm – Tea is delivered
6pm – Tea time drug round, observations done and evening chemo given. Evening bin emptying.
10pm – Final drug round, observations done and antibiotics administered for again half an hour
2am – The most fun time to be woken up for observations!! Some nurses are also more discreet than others on the level of lighting they choose to throw upon me as they enter the room!
In between – I either sleep, nap, knit, watch tv, do yoga, go for short walks, listen to my audio books, read, etc.
I have found that after the last month in and out of here I have become conditioned to the early morning wake up calls and usually wake up before the nurses come in to do my obs or when i hear the shaking of an apron outside my door during the night!! I have also learn the art of falling back to sleep almost straight after being woken up, although this doesn’t happen every time. Reckon I will still wake up at 2am and 6am even when I’m set free!!